‘I’ll fight on for a better deal for epilepsy’ says Horncastle man

Andrew Jackson who is campaigning for a fairer deal for epileptic patients
Andrew Jackson who is campaigning for a fairer deal for epileptic patients

A Horncastle man has vowed to continue his campaign for better epilepsy services in the county, despite achieving some level of success.

Andrew Jackson, of Low Toynton Road, is among an estimated 5,000 people in Lincolnshire who suffer from epilepsy.

Mr Jackson claims the illness should be treated as seriously as cancer and heart attacks.

However, he says many patients have to travel outside the county for vital treatment.

As part of his campaign, Mr Jackson wrote to Louth and Horncastle MP Sir Peter Tapsell.

Mr Jackson received a letter by Sir Peter containing a reply from Doctor Brynnen Massey, chair of the Lincolnshire East Clinical Commissioning Group (CCG)

In the letter, Dr Massey accepts that CCGs in Lincolnshire do not commission a specialist epilepsy service from the United Lincolnshire Hospitals Trust,

However, he adds that the Trust has recruited a consultant neurologist with a ‘special interest’ in epilepsy and is considering employing a specialist nurse.

He admits patients might still have to travel outside the area for treatment but said the Trust is committed to providing “high quality, accessible services.”

Dr Bassey also confirms that as a direct result of Mr Jackson’s campaign, the name of a clinic at Lincoln County Hospital has been changed from ‘First Fit‘ to ‘First Seizure.

He accepts the initial name was “inappropriate.”

Mr Jackson said: “What has happened is progress, but there is still a long way to go.

“Epileptic patients deserve a better, fairer deal.

“They should have a right to see a specialist nurse or neurologist.

“I am very passionate about this and won’t stop until it happens.”

Mr Jackson is hoping to encourage local schools to join in next month’s National Purple Day, which will highlight epilepsy and help raise funds.